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Navigating Medicine Shortages: The Struggles Faced by Rare Disease Patients in Iran
Hamidreza Edraki, CEO of the Rare Diseases Foundation in Iran, emphasized the urgent challenges in accessing medications for rare disease patients. He cited customs clearance delays that render essential imported drugs unusable, highlighting the country’s reliance on imports as domestic production for rare diseases is limited. Edraki noted that nearly 6,500 individuals are registered with the foundation, but many remain undiagnosed. He identified consanguineous marriages and environmental factors as contributing to the prevalence of rare diseases. To improve the situation, he advocated for reforms in drug supply, genetic counseling, and public awareness initiatives to support affected individuals.
Kish Island Set to Host the 4th International WANA Congress: A Global Gathering of Innovation and Collaboration
The fourth international congress of West Asian and North African (WANA) countries will be held on May 3-4 on Kish Island, focusing on ‘Stem Cells in Regenerative Biomedicine’. Organized by the Royan Institute and the Kish Free Zone Organization, the event aims to promote joint scientific research among regional nations. Key themes include organoids, cancer treatment, bioengineering, cell and gene therapy, and AI in biology. Both national and international participants can join in person or online. The congress follows a successful previous event on Assisted Reproductive Technology, and aims to establish the WANA Scientific Network to enhance scientific collaboration and knowledge exchange.
Unlock the Secrets of Your Mind: Why Your Brain is the Key to Total Body Wellness
National Brain Awareness Week will take place from February 22 to 28 in Tehran, focusing on cognitive sciences and brain health. Established in 2015, the tenth edition, themed “Know your brain, your brain is your entire body,” will feature educational programs and conferences at schools and cultural centers. It aims to improve public knowledge on brain disorders, early diagnosis, treatment options, and prevention strategies. This initiative encourages community engagement through workshops, lectures, and outreach programs. It aligns with the global World Brain Awareness Week from March 10 to 16, promoting awareness of brain research benefits. Participants are urged to engage and learn about maintaining brain health.
Surge in International Enrollment: Foreign Students in Iranian Universities Nearly Doubled!
Iran is increasingly attracting foreign students, with enrollment rising to nearly 60,000, up from 35,000 the previous year. Students from 101 countries, mainly Afghanistan, India, Iraq, and Pakistan, are pursuing education in Iranian universities. Plans are underway to enhance support services, including online Persian language courses for incoming students. The Iranian ministry aims to boost international student numbers to 320,000 by 2026 to strengthen scientific authority and public diplomacy. Additionally, Iranian universities have improved their global rankings, with 72 recognized in the latest World University Rankings, reflecting the country’s commitment to enhancing academic quality and international collaboration.
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Urgent Action Needed: DOE Unveils Regional Plan to Protect the Caspian Sea
The conservation of the Caspian Sea is urgent, according to Sediqeh Torabi from the Department of Environment. At COP30 in Brazil, she called for a regional action plan to address the declining health of the sea, which threatens economic stability and social security for coastal communities. Torabi emphasized the need for collective action among the five littoral states, proposing a permanent joint scientific institution for monitoring water levels. Discussions included restoring coastal wetlands and the necessity of financing for climate strategies in developing countries like Iran. Collaborative efforts were reinforced through a Declaration, highlighting the importance of united action for the Caspian Sea’s future.
